Your support makes our work possible
The Spastic Paraplegia Foundation, Inc. is a volunteer-driven, charitable organization. It is the only organization in the Americas dedicated to upper motor neuron disorders called Primary Lateral Sclerosis and Hereditary Spastic Paraplegia. Together, these conditions affect some 20,000 children and adults in the United States.
We are indebted to our community, sponsors and friends who make our work possible. Corporate sponsors whose contributions are valued at $2,000 or more include:
Sponsorships are an excellent way to promote your company while supporting a worthy cause. There are many ways to get involved, including sponsoring national conferences, TeamWalk For Our Cures, local events, the SPF website, Chat sessions, E-News, or other initiatives. It’s good business because sponsorships can:
Enhance your company’s public image
Draw attention to a product or service
Contribute to an increase in sales
Boost employee morale
More than just good business, your support is critical in helping to find the cures for neurologic conditions. Researchers say common threads link conditions including SPF upper motor neuron disorders, other motor neuron disorders such as Amyotrophic Lateral Sclerosis, spinal cord injury, Alzheimer’s Disease and other disorders affecting millions of Americans. Research is accelerating and investigators believe great strides can be made in this generation.
Contact us to discuss partnering with your company today!
In 2015 almost a dozen HSP Patient Advocacy Organizations from all over the world met in Madrid Spain to join forces to establish an international connection and resource to make sure a first rate, well established and impeccable HSP Patient Registry is set up. This will allow our next Clinical Trials to go forward smoothly and effectively. Good communication channels have also been established so as to allow for a smooth flow of information among scientists and organizations such as The Spastic Paraplegia Foundation.
When Clinical Trials begin in 2017 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.
93 cents of every dollar you donate goes into our mission of research and service. 4 cents goes to fundraising and 3 cents goes to data management and general expenses. Our all volunteer Scientific Advisory Board makes sure that we are supporting only the very best research projects on the planet. The Spastic Paraplegia Foundation is an all volunteer run foundation. Our highly skilled staff, Scientific Advisory Board, Medical Advisors, CPA, Attorney, President, Board Members - all of us are working hard every day probono because we strongly believe in this cause. We know a cure is right within reach and we ask you to please join us in reaching by making a tax deductible donation.