Planned Giving provides donors with the ability to support nonprofit associations and charities by arranging for gifts to be made through financial or estate planning. This practice enables donors to make charitable gifts now and establishes provisions for gifts that will continue after their lifetimes. Planned Giving also provides an avenue for supporters to make even larger donations than they could during their lifetimes. This approach provides financial and tax benefits to both donors and their heirs.
The Spastic Paraplegia Foundation benefits from Planned Giving through our endowment fund. This fund was established in 2013 with a gift of $25,000, and through additional and generous contributions over the years to come stands to reach to ever larger amounts. Only the interest income from the fund is used to support Foundation programs, while the principal remains untouched, growing ever larger as new donations are made.
There are a number of ways to contribute to the Foundation’s endowment fund – bequests, gifts of stock, ownership of property, direct donations, and more. Each of these vehicles can offer substantial tax deductions to the donor, and each helps to guarantee the future of the Foundation’s work.
Bequests are made through a will or a trust, and represent the most common type of planned gift. Remembering the Spastic Paraplegia Foundation in your will is an important and personal way of providing hope to children and adults with Hereditary Spastic Paraplegia and Primary Lateral Sclerosis until the happy day when a cure will be announced. Bequests are fully deductible for estate tax purposes.
To make a bequest of cash or other property to the Foundation, your will (or supplemental codicil, if you do not wish to write a new will) should state: “I give and bequeath to the Spastic Paraplegia Foundation, a nonprofit corporation, organized under the laws of the Commonwealth of Massachusets, and having its office at 1605 Goularte Pl. Fremont, CA 94539 the sum of $____ or ____ percent of the rest, residue, and remainder of my estate to be used for general purposes of the Foundation.”
It is strongly recommended that you seek advice from your personal tax or legal advisor when making a bequest. These professionals can provide important guidance in setting up a bequest that is best suited to your individual tax situation.
Planned gifts can take several different forms. Funds can be contributed from:
Trusts, such as charitable lead trusts and charitable remainder trusts
Charitable gift annuities
Life insurance policy assets
Retirement plan assets
Please know that your planned gift can make a significant difference in the lives of patients and families fighting the rare upper motor neurological disorders of HSP and PLS, and will aid in funding real life changing research toward a cure.
If you would like more information about presenting a gift to the Foundation’s endowment fund or making a bequest, please contact the Spastic Paraplegia Foundation at 1 877-773-4483.
In 2015 almost a dozen HSP Patient Advocacy Organizations from all over the world met in Madrid Spain to join forces to establish an international connection and resource to make sure a first rate, well established and impeccable HSP Patient Registry is set up. This will allow our next Clinical Trials to go forward smoothly and effectively. Good communication channels have also been established so as to allow for a smooth flow of information among scientists and organizations such as The Spastic Paraplegia Foundation.
When Clinical Trials begin in 2017 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.
93 cents of every dollar you donate goes into our mission of research and service. 4 cents goes to fundraising and 3 cents goes to data management and general expenses. Our all volunteer Scientific Advisory Board makes sure that we are supporting only the very best research projects on the planet. The Spastic Paraplegia Foundation is an all volunteer run foundation. Our highly skilled staff, Scientific Advisory Board, Medical Advisors, CPA, Attorney, President, Board Members - all of us are working hard every day probono because we strongly believe in this cause. We know a cure is right within reach and we ask you to please join us in reaching by making a tax deductible donation.