Date & Details - Click the links below.
First Tuesday of each month, 6:30pm-8:00pm
The Neurologic Disorders Support Group Meetings are held on the first Tuesday of the month.
Lower Level Conference Room B1 407B at the East Ann Arbor Health and Geriatrics Center (4260 Plymouth Rd, Ann Arbor, MI 48109). map and directions.
If you have any questions, please contact Lynette Girbach at firstname.lastname@example.org or by phone at (734) 936-3087.
First Tuesday of each month
Contact Steve at email@example.com (an SPF member who participates in the group)
Meeting the first Thursday of each month from 5:00pm – 7:00pm
Meeting for people with spinal cord injuries and diseases. Always looking for speakers, and family & friends are also welcome!
For questions, call (800) 300-6016.
2nd Saturday of the month
Mercy Suburban General Hospital. Organized by Liz Nussear, an SPF member. Contact firstname.lastname@example.org
December, March, June and September
Co-chaired by Cece Russell, a member of the SPF. Contact email@example.com
Local chapters of these organizations often allow members of our community to attend their support groups. Please consider contacting them and let us know if you join one so we can add that group to the above list:
Our Casual Connections are as easy as meeting for coffee or lunch. This offers opportunities to meet others, share knowledge, strategies, ideas, support, understanding, concerns, issues, solutions, research updates, tears, smiles and laughter. firstname.lastname@example.org
How to host your own rewarding event
In 2015 almost a dozen HSP Patient Advocacy Organizations from all over the world met in Madrid Spain to join forces to establish an international connection and resource to make sure a first rate, well established and impeccable HSP Patient Registry is set up. This will allow our next Clinical Trials to go forward smoothly and effectively. Good communication channels have also been established so as to allow for a smooth flow of information among scientists and organizations such as The Spastic Paraplegia Foundation.
When Clinical Trials begin in 2017 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.
93 cents of every dollar you donate goes into our mission of research and service. 4 cents goes to fundraising and 3 cents goes to data management and general expenses. Our all volunteer Scientific Advisory Board makes sure that we are supporting only the very best research projects on the planet. The Spastic Paraplegia Foundation is an all volunteer run foundation. Our highly skilled staff, Scientific Advisory Board, Medical Advisors, CPA, Attorney, President, Board Members - all of us are working hard every day probono because we strongly believe in this cause. We know a cure is right within reach and we ask you to please join us in reaching by making a tax deductible donation.