CA WALK ’n ROLL & Connection. September 24, 2016. 16th year. 37 attendees - SHARE AND COMPARE discussion after lunch while friends and family cleaned up.
It seemed people enjoyed not having to go on an actual walk or roll and we had changed up the venue and location this year and fewer people attended but money was comparable. People were already talking about next year.
The “walk” consisted for those who wanted, toured the Little Church, 1874, and Craig gave a brief history. Many more raffle items donated this year which seemed to be the highlight of the day and there was $775 in cash just for the raffle.
Attendees were encouraged to bring a raffle item or two and most did. Four members did their annual letter campaign and were Walker-by-Proxy. All four contributed greatly to the bottom line. Linda walked for the PLSers (Hank, Lee and Dave) and Jean walked for Jackie. Jean made the tags.
We have a very committed group and “members” came from southern CA, northern CA, OR and Jean from Vancouver. PLSers and HSPers really appreciate the opportunity to “share and compare” their progression from the previous year.
The CFC or Combined Federal Cam-paign is a fundraising campaign the Federal Government offers its employ-ees to participate with each year. It begins Sept 1st and goes through Dec 15th. Federal employees are allowed to pick from over 200 registered nonpro-fits to contribute to. Many CFC fairs will be held at Federal facilities throughout the campaign. This allows employees to learn about the nonprofits and make their selections.
Please let friends and family members who are Federal employees know they can choose the Spastic Paraplegia Foun-dation to donate to. The SPF CFC num-ber is 12554. The following are exam-ples of Federal employees: law enforce-ment, mail personnel, VA or Veteran’s Administration employees, Medicare, Medicaid, military and many types of governmental jobs. If donors want to know more, please have them log on to
If you have any questions or sugges-tions, please contact Jim Sheorn at email@example.com or 615-479-7369.
Please help us generate more financial resources for research.
When Clinical Trials begin in 2017 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.
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