Central Texas Get Together August 2016
The 2016 Austin, Texas Patient Connection was held August 20, 2016 with 20 people attending. It was a wonderful time for people to meet with others who have Hereditary Spastic Paraplegia (HSP) or Primary Lateral Sclerosis (PLS). We visited and shared information with each other. I hold an Austin Patient Connection each year as I know what it felt like to be the ONLY one you know who has a rare disorder. Meeting others with the same rare disorder helps in getting information and can change lives in the way lived. Three years ago at an Austin Patient Connection one of the attendees showed me a scooter she had, which I went and purchased online. This changed my life in being able to be more independent to do more and get things done faster.
~ Marlene Doolen