Liz definitely keeps us busy in spite of the challenges she faces every day, writes her father George Lepper. Spasticity, cramps and broken equipment seem to be an every-day occurrence. Liz goes to the Vocational Training Center three days a week, college two days a week, plays power wheelchair soccer every Monday afternoon, takes voice lessons on Wednesdays to work on retaining some form of voice communication as well as writing songs.
She presented one of her songs with the help of a fellow voice student at a music recital. She goes kayaking with the Cal Poly University Kinesiology department once every quarter. She loves going to to our local Renaissance Faire where the queen looks forward to seeing Liz and her friends all dressed up in their wheelchairs.
Although her speech is diminishing slightly she has her speech-device for a back up that allows her to communicate in classes, do social media, and has a computer that does everything from word processing to song writing.
“Liz is definitely an amazing young woman,” writes SPF Vice President Linda Gentner. “At the annual conference in LA, she demonstrated her wheelchair soccer skills. Every year we post her picture on our Walker By Proxy board — she’s definitely a Walker by Proxy extraordinaire.”
“If any of us ever feel sorry for ourselves, we just need to try to keep up with Liz. ”
The CFC or Combined Federal Cam-paign is a fundraising campaign the Federal Government offers its employ-ees to participate with each year. It begins Sept 1st and goes through Dec 15th. Federal employees are allowed to pick from over 200 registered nonpro-fits to contribute to. Many CFC fairs will be held at Federal facilities throughout the campaign. This allows employees to learn about the nonprofits and make their selections.
Please let friends and family members who are Federal employees know they can choose the Spastic Paraplegia Foun-dation to donate to. The SPF CFC num-ber is 12554. The following are exam-ples of Federal employees: law enforce-ment, mail personnel, VA or Veteran’s Administration employees, Medicare, Medicaid, military and many types of governmental jobs. If donors want to know more, please have them log on to
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When Clinical Trials begin in 2017 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.
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