SPF is committed to providing information about for these disorders, creating opportunities for mutual support and sharing, and discovering the cures for HSP and PLS by funding research. Our primary goal has been to raise money to find a cure. Since our creation in 2002, we have raised and funded almost $5 million in research grants.
Register Today for the 2018 SPF Annual Conference in Pittsburgh PA June 22-23rd
We are excited to announce that our 2018 Annual Conference will be in Pittsburgh PA on June 22 & 23rd, 2018. Come to hear the best scientists tell us all about the light at the end of the tunnel for a cure for HSP & PLS. Enjoy meeting people from all around the country and world who have had years of experience with HSP and PLS. The Hotel has a special rate for people registering for this conference and is convenient to travel from the airport. Just click the photo above today to go to our registration page.
Join Us and Stay Informed
When Clinical Trials begin in 2018 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.
An Organization You Can Trust
93 cents of every dollar you donate goes into our mission of research and service. 4 cents goes to fundraising and 3 cents goes to data management and general expenses. Our all volunteer Scientific Advisory Board makes sure that we are supporting only the very best research projects on the planet. The Spastic Paraplegia Foundation is an all volunteer run foundation. Our highly skilled staff, Scientific Advisory Board, Medical Advisors, CPA, Attorney, President, Board Members - all of us are working hard every day probono because we strongly believe in this cause. We know a cure is right within reach and we ask you to please join us in reaching by making a tax deductible donation.