Dr. Fink is the Director of the Neurogenetic Disorders Clinic at the University of Michigan, Ann Arbor. He’s also a Professor in the university’s Department of Neurology and is a Physician Scientist at the Geriatric Research Education and Clinical Center, Ann Arbor Veterans Affairs Medical Center. His research interests are analysis of inherited and degenerative disorders of the nervous system (including hereditary spastic paraplegia, primary lateral sclerosis, inherited movement disorders, schizophrenia) and regulation of neuronal development.
Dr. Fink received his M.D. from the Medical College of Ohio in Toledo. He did his residency training in neurology and genetics at the University of Virginia, Charlottesville. At the National Institutes of Health in Bethesda, Maryland, he did a post-doctoral fellowship in the Developmental and Metabolic Neurology and Medical Genetics departments.
Park Nicollet Clinic, St. Louis Park, MN
Dr. Nance received her B.S. from Yale University and her M.D. from the Medical College of Virginia. She did her residency training in neurology at the St Paul Ramsey Medical and the University of Minnesota Hospital and Clinic. At the University of Minnesota, she did her post-doctoral fellowship in Medical Genetics.
Associate Professor, Department of Anesthesia/CCM, Life Flight, Medical Director – CCT, Stanford University School of Medicine, Stanford, CA.
VP & GM Genomics, Covance Drug Discovery, Seattle, WA.
Senior Clinician, Motor Neuron Disorders Unit, National Institute for Neurological Disorders and Stroke (NINDS), National Institutes of Health (NIH), Bethesda, MD
Associate Professor, Department of Neurology; Co-
￼Director, Division of Movement Disorders, University of Pennsylvania; Perelman Center
￼for Cellular & Molecular Therapeutics, The Children Hospital of Philadelphia, PA.
South Shore Neurological Associates, Long Island, NY
Associate Professor, Department of Neurology, Division of Movement Disorders, Vanderbilt University, Nashville, TN.
Professor, Department of Neurology & Department of Anatomy and Neurobiology, University of Tennessee Health Science Center, Memphis, TN.
Assistant Professor, Departments of Neurology & Molecular and Human Genetics, Baylor College of Medicine, Houston, TX
Adjunct Research Assistant Professor of Neurology, Medical School, University of Michigan, Ann Arbor, MI.
Associate Professor of Biochemistry and Molecular Biology; Chair, Molecular, Cellular and Integrative Biosciences program; Director, Center for Cellular Dynamics; ￼ , Penn State, University Park, PA.
Associate Professor of Neurology, Stanford University, Stanford, CA.
In 2015 almost a dozen HSP Patient Advocacy Organizations from all over the world met in Madrid Spain to join forces to establish an international connection and resource to make sure a first rate, well established and impeccable HSP Patient Registry is set up. This will allow our next Clinical Trials to go forward smoothly and effectively. Good communication channels have also been established so as to allow for a smooth flow of information among scientists and organizations such as The Spastic Paraplegia Foundation.
When Clinical Trials begin in 2017 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.
93 cents of every dollar you donate goes into our mission of research and service. 4 cents goes to fundraising and 3 cents goes to data management and general expenses. Our all volunteer Scientific Advisory Board makes sure that we are supporting only the very best research projects on the planet. The Spastic Paraplegia Foundation is an all volunteer run foundation. Our highly skilled staff, Scientific Advisory Board, Medical Advisors, CPA, Attorney, President, Board Members - all of us are working hard every day probono because we strongly believe in this cause. We know a cure is right within reach and we ask you to please join us in reaching by making a tax deductible donation.